Living with Chronic Illness & Disorders: Are You a Survivor?

Once upon a time, I was a vibrant, youthful teenager...

My First Encounter

During my first pregnancy, I had contracted chicken pox from my young nephews and niece. Though it made for an irritable time in my initial trimester, I hadn't given it much aforethought. In the last part of my Pregnancy, I noticed some weakness in my legs and arms, but naturally assumed it was part of the gestational effects.

It was after I gave birth, that I began having more frequent physical difficulties, but again, attributed these nuisances to normal post-partum effects. As time progressed, I began losing balance & coordination; and even dropped everyday household items such as glasses, keys, and other things as well. I had finally had enough when my rib cage began to feel broken and I couldn't stand the pain any longer. Over a decade later, and after numerous doctor visits, MRIs and multiple lab tests; I was finally diagnosed with Fibromyalgia.

What is Fibromyalgia? Fibromyalgia is a chronic pain illness that can cause musculoskeletal pain in various areas of the body, is characterized by fatigue, and is often associated with Restless Leg Syndrome, Migraine and rheumatism - to name a few. Additionally, attacks of fibromyalgia seem to spontaneously come and go.

At first, I was treated with multiple 'pain aids' that did help with the pain, but made me even more tired than I was before I took the Medicines. Eventually, I went off the medications and focused on my work and simply 'ignored' the illness. I figured if I had to live with it, I might as well accept it.

What I Didn't Know

What I didn't realize was that Fibromyalgia can weaken a person so much that sometimes, individuals can be more quickly injured or more prone to other conditions than those without Fibromyalgia. That's when I experienced my first real encounter with its lethal effects. While at work, I wasn't doing anything too terribly physical. However, it was the day in and day out repititions of physical labor that not only added to my condition but wrecked further havoc on me as well - and left me susceptible to injury.

On the Job Injury

There I was, performing my normal work activities when, 'Ouch!' and 'Oh my God!' entered my mouth. The pain was excruciating. Numbing and impairing. With a simple maneuver, I was incapacitated. Pain and tingling numbness ran down my right side. It was unbearable. Not only that, I could barely make it to the office because I had to drag my right leg to get to where I needed to be.

When I got to the hospital, I was told that "...you sprained your back..." That was it. No MRIs, just a quick once-over to tell me that all my pain, my lack of feeling - according to workers compensation' doctors - was merely a 'sprained back.'

I knew I had fibromyalgia, but it had NEVER acted in this sense. Not because I was 'weak,' but because my right side had gone totally numb. It was frustrating to say the least. Nearly 9 months after my injury, and even working on light-duty while taking heavy pain killers, doctors FINALLY found that my right shoulder had been subluxated (dislocated) and scheduled me for surgery. After the surgery, I went through months of agonizing physical therapy to get my right arm back into its proper range of motion. But the numbness, the back pain and the lack of feeling in my legs still came and went without any signs of remorse.

Shocking Discovery

By the time I had went through my rehabilitation, my employer 'let me go' because I was obviously unable to work. I attempted to go back to work as an office manager for a wonderful & understanding employer, (I figured it was light work.) and performed fairly well for a few months. Suddenly, I was in a hospital emergency room - this time, I came out in a wheelchair. Not only did MRI tests confirm I had a herniated disc at the C-3/4, but I also had a spinal lesion (myelopathy) at the C-1/2. Strange that workers compensation doctors coudn't find it, but numerous MRI tests this time, confirmed it.

After seeing a few, reputable Neurologists, I was additionally diagnosed with Transverse Myelitis (TM) and a 'bulging disc' (herniated disc). This explained why I had been encountering all these unrelated physical problems.

Giving Up

I guess when I first sat in my wheelchair, I instinctively gave in to my physical condition. Why bother living anymore, I thought. I couldn't function properly and felt like a complete invalid. How was I going to make my household payments? How was I going to care for my two, then elementary schoolers? How was I even going to live? While all these thoughts ran through my mind, I w